Friday, April 24, 2009











We got the results of the MRI and they said that she has a problem with the mialanation of the brain and her brain was a little smaler than it should be. This means that the tubes that information travels through in the brain developes this coating that makes info run faster as you get older, this is called mialanation. Baybes hasnt dveloped as much coating as it should and that is why her information travels slower than it should be that is why she is developementally delayed. Still doesnt explain the seizures but the two tend to go hand in hand. This wasnt too sad of news except for the fact that if we check again in a year and it hasnt improved then it probably wont and her developement will remain the way it is now. I have excepted in my life that she would always be disabled but until now we didnt realize how bad it would be. We started having to meet with people one after another to make a bunch of decisions about equipment and care services for her. We had to get a car seat for her that cost 800 bucks originally but were getting a discount for 5oo. We finally got a bath seat but I dont think she likes it because she cried when I put her in it. They tell us we need a wheelchair right away but we opted to go with a tricked out stroller instead for a few years until I can adapt my vehicle and we get into a one story house.

The EEG results didnt show too much new but that the choking at the end of the seizure was for sure something related towhen she has the seizure and not in between. Even though we were against the diet before those reasons are no longer relavent so I am very excited. First of all before she was 3 months old and they had never done it on a child that was that young before. Second before we worried about her food because she loved eating so much and the diet would change the way she could eat. It would have been this dusgusting menu of food that is difficult to get kids to eat. Third at that time I still was under the impression that she would crawl someday and want food that other kids were eating and I would have to be so carefull. If your on the diet and they get a bite of a cookie it could send them into a bad seizure. Now we know that she is much older age 2 years and 3 moths, she cant taste food anymore anyway because the food goes through a tube in her belly, and we cant let her put anything in her mouth anyway because she asperated so we already have to be super careful, and we know now that she wont crawl or want what others have so it just makes sence to give it a try now. We start Monday April 27, 2009.

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