I am so TIred!!

YAY, Baybeblue started her new playgroup and it was so great. There was only one other child there this time but it is only the first class so they are expecting more. The little boy is named Sammy and he is sooooo cute. He is about the same size and age as Baybe and has almost all the same disablitlites. He has seizures, Cerebral Palsy, vision problems, and a G-tube. Baybeblue did so well and really seemed to enjoy the activities and watching Sammy enjoying the activities. Her therapists, Kathy and Mary did a great job setting this up and I cant wait to meet more little friends for Baybe and more amazing parents like Sammy's. We exchanged numbers so we could be here for support for eachother. If anyone in the North Clackamas school district is interested in joining something like this please email me and Il pass it on to the therapists. Il add some pics on here.

I am in the process right now of working with people regarding what happened with Baybeblue and I am in desperate need of a good lawyer that I can really trust. Portland is not that big of a town and the hospitals have alot of people on there side that we dont know about. I am having a hard time just contacting anyone online and telling them information and getting bad advice like my last lawyer. If anyone can make a recomendation I need someone that I can truly confide in and I know they are not going to mess up the situation any further. I am so saddened everyday that I still dont really know what happened at the hospital and everyone seems to think that if they keep putting me off Im just going to give up on finding the truth. I want something to change so that another parent doesnt have to go through what I have gone through and I dont ever again either. Please email me if you have any suggestions,THank you!

Other than that everything has been going very well. Baybeblue is still only having barely noticable seizures mostly only involving her eyes now. She has quite a few of them a day but there so little you cant hardly tell and there only a few seconds and then shes right back to normal. She is functioning on a very alert level and making all kinds of noise. She is rolling around and trying to sit up actually doing little baby crunches all day, just working those belly and back muscles. Her flexability has improved greatly in the last month she is now able to spread her legs comfortably around me and I can prop her on my hip like you would a 2 year old. Before she was so stiff in her hips that we had a bunch of tests done on them to see if there was something wrong. All the tests said they were perfect but still she cried everytime you tried to make her straddle your lap or hip or even in normal therapy stretching. Everyone has been saying lately how she is opening her eyes much bigger and she is tracking people across the room now. She was so cute at her playgroup when Sammy would make noise she would stop what she was doing and watch him. I got a great tip which invloves SYRINGE ADVICE: I have been battling with the medical supply company because they keep sending me new syringes to try and they are not good. The noses of them are too small for Baybes tubing and/or there too small or too big. I found the perfect most amazing syringes that are perfect for giving meds or food through the G-tube. Olsons Medical supply in Milwaukie found them and ordered them for me and I am in love with them. The brand is Apex and there called Oral Medication Syringes that hold 2 tsp/10 ml. I cant even explain to you how much easier they are making my life. The other syringes have been clogging with her new meds and I keep spraying the stuff all over the room and and my bed on accident. I actually Clogged her G-tube on the inside of her belly for the first time and couldnt figure how to unclog it but then remembered the decompression tube has a long hard tip so i stuck it in and it worked. Thats another cool tip. Also if they are not on diet restrictions then a little bit of meat tenderizor will unclog any tube.

We are now preparing to hear that her wheelchair will be here anyday. Ya know it has been a real pain in the a** to get every piece of the puzzle together myself to get this chair and Im wondering who exactly wasnt doing there job right. Baybeblue has been riding around in a regular stroller that is too small for her for months and we still dont have it. Anyway it should come soon and then wele be moving in the next couple months into a one story and my back hopefully will start feeling better from not carrying her up and down steps.

I have also been looking for a gym in the area of clackamas county that I can go work out at with Baybeblue by my side. I have checked out a couple places but most do not allow children in the workout area regardless of wether or not they are disabled. I am not looking to have someone watch her for me, she is no trouble and no noise and would probably enjoy watching me workout. I just need to find a place that is willing to make a consideration for her. Please let me know if anyone has any information on or knows anyone that might be able to help. Thank you everyone for visiting my blog today and dont forget to check out Lala's Blog from the sister of Baybeblue at http://baybesbigsis.blogspot.com/