Tuesday, September 15, 2015

Yes Im back again and your not going to believe all this...

So yes Im back and although we are not great were not bad either, We have been through some crazy stuff though. Blue for a while was on track of being for the most part seizure free but whenever she popped a tooth or sick and especially when she was sick she would always have more seizures. Im not gonna lie and act like this is easy for me. I couldnt help but read a few of my old posts and immediately the emotions of everything we have been through rush into my head. I click off of it fast as if it was a horror movie with bloody gruesome images. Sometime I think it would be easier to see that than to have to relive the saddness that is sealed inside this blog. I hope it can inspire others or teach them something but for me it is all mistakes and learning from them and some I just cant even think about. my biggest regret will always be freaking out over that stupid little eye flutter. No one would believe me that it was seizure related. I was so sure I needed to prove it to them and when I finally did they drugged her so bad she ended up in a coma and her life was changed forever. I wish more than anything I had the knowledge then to never put her on those terrible drugs. From now on I will be following my instincts and I accept her for her seizures and all. I might jump around a little until we are all caught up but for now I wanted to get her new seizure videos up so we could start our new story. The one that Blue is leading us all through. lets start out with some happy news. Baybeblue had her Make a Wish. When we decided to start Blues Make A Wish process It was following the sad passing of Blues little boyfriends Ryan and Carter. Sammi had passed a while before but the thought of something happening to Blue before she had a chance to experience this was too much so we contacted them and it went really fast from there. They told me I would need to pick 2 possible wishes for Blue. I was overwhelmed by the pressure of having to make this decision for her. This was a once in a lifetime opportunity literally and Blue cannot speak so it would be completely up to us to decide what would make her happiest. Blue gets stressed in too chaotic environments so we knew Disneyland or traveling too far was out of the question. Also Blue wasnt doing very well and barely ever woke up so the decision proved harder than I thought. I started researching online previous wishes that kids had done before to get ideas and I ran across the video of an amazing little girl with a brain tumor. It had already taken her ability to walk and was close to taking her voice too but she wished to sing a cover to Katie Perrys Roar. They used auto tune and made her sound like an absolute angel. https://www.youtube.com/watch?v=m_An8xNwupo
Her story just touched my heart so deeply, Olivia Wise passed away after making this video and the fact that her mother will always be able to watch this and see her and feel her voice just filled me with emotion and I knew instantly that If something happened to my princess I would give anyting to have something like this forever. Here is more of her story, she is so beautiful.  https://www.youtube.com/watch?v=fG5N1Qm3twI
So the process started. Since Blue cannot sing but she is gorgeous so I decided she should star in her own music video.   We chose a roadtrip with the family in an RV for her comfort was our second choice if the music video idea wasnt approved.  On Our visit with Make a Wish they let us know that the music video was approved and they were very excited about it.  The next step was chosing who would sing her song. Our first choice was Katie Perry. Blue and I love to lay in bed and watch youtube videos of people singing so we took to youtube to find our winner. Immediately Blue lit up when we played Katie Perry Roar, that was her favorite song so we brought the idea to Make a wish. They let us know that it was a possibility but it would be years that we had to be on a waiting list for any celebrity and probably longer for the popular choice Katie Perry. We thought long and hard about it and with how bad Blue was doing we decided we were gonna find someone else. We started searching through tons of videos and came across a Girl named Candice Russell who did a spot on Cover of Katie Perry and Blue loved it! Her face lit up like i hadn't seen before and instantly I knew she was the one. I read a little bit about her and turns out she is an American Idol finalist and lives in Oregon! I emailed the Make A Wish People and told them the name and information on Candice and they said they would contact her people and see what they could do. At the next meeting with Make a Wish we met with the production company that would be shooting the video and they were just amazing! Jonathon and James from http://www.visualaidinc.com/  were Blues guys and would be working with us through the whole process. They said they were unable to contact Candice;s people but luckily I had decided to try messaging Candice on Facebook and she had already messaged back and was totally excited to do it! I passed along her contact info and next it was time to have a meeting with Candice too to brainstorm ideas. They were really wanting to incorporate the whole family into the wish process so they suggested that we all be in the video with Blue. I was pretty nervous at the thought but agreed. I went home and couldn't stop picturing us trying to do a dance number or something and then it came to me. We tell the story of her Make a Wish. Each scene can be with each member of the family doing something with Blue that they love to do and leading up to meeting Candice. James and Jonathon loved the idea so they took it and wrote the whole video. It took us the whole summer to shoot at different locations but each one turned into a special memory as it played out. We made some great new friends along the way too. Candice's family is just the best. Her brother and her parents were in on the process and I just fell in love with all of them. I asked to end Blues video with a tribute to her guardian angels Sammi, Ryan, and Carter. So without further ado.. Here it is Blue's Make-A-Wish Music Video  You can check out more on Candice Russell at http://www.candicerussell.com/




































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