Today Baybeblue went into full ketosis and began the formula for the ketogenic diet. We are working to keep the ketones flowing and her glucose down to 50-75 instead of the normal 120. She has tolerated the food well but did vomit one time at the end of a big seizure but the docs arent too worried. It is normal to have some other small issues while the body adjusts to the new diet. I feel like even though she has had a lot of seizures today she seems to be in a great mood. They came and took pics of her today and I will add a few of them. two are from before when she still had the nose tube but the hospital just put them on a disc for me. A volunteer photographer comes around and takes pics of the sick kids and gives us copies it is very sweet. We are now just waiting to make sure her body is going to tolerate the diet and teach me a whole buch of stuff about weighing and measuring and calculating her new food, finger pokes, and urine testing at home will be required. We have to get all her meds switched to non carb and non sugar forms becaue she is not allowed to have even a drop of either still waiting on that. If everything goes really well I might be home before the weekend. Wish us luck. The pic of the pee stick is showing the maroon on the third color up meaning she is throwing full ketones!!! yahh
Monday, April 27, 2009
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