Well Baybeblue had her Doctor Appointments on thursday and she saw a pediatrician that checked her all out and said she was totally healthy and doing great. We got a chest X-ray just to make sure there was nothing starting because of all the coughing and they said it looked really good. It was a little confusing but over the last few days I have noticed that it gets worse when she smells food. I think she is producing more saliva when she smells things and that is making her cough since she has trouble swallowing. I dont know but they said she was good to go to the beach all the way!! Then we saw the CDRC clinic doctors which is a pediatrician and a dietician and one other doctor that I cant remember what she does but they were very nice. They said her tube hole looked great and they didnt even think it needed to have the extra skin removed. They said her scar is not infected that its popping out the last of the stiches. I guess your body rejects them so they pop out of the inside at some point. So shes just throwing a stitch and otherwise they said the scar and everything looks really good. She weighs the exact same amount sittin right at 30 pounds. THat is the same that she weighed before this all happened so shes handling the diet perfectly. I asked for advice about keeping sand and water/germs out of her G-tube hole and they suggested taping seran wrap over it and they wouldnt worry about it at all. The main Doc even said she was clear to swim if we want. All in all it was a great visit to our old home at OHSU and now we are off to the BEOTCH!! Im a little nervous about going with no boys because we have never done the whole bon fire and all that ourselves before so Im sure this will be an adventure. I have the hospital plan all figured out and got some very good advice from our therapist Mary who has taken her children that are disabled to the beach many times.
Baybes seizures have stayed the same still she is having 2 a day and they are the same severety. We were hoping for the seizures to stop completely but this is great. She has developed a small new thing that involves eye squinting during them which Iv never seen so I guess I will hust add it to the list.
The kids had there last day of school yesterday and we picked them up from school in Hush's convertable BMW with the top down and a bunch of baloons hanging out the back. Then we went to pietros for some celebration but by the time we got home we were all too tired to do anything. Now I have a whole day to pack and plan, clean and hopefully make it to the DMV because my darn tags just expired and the last thing I need is a ticket at the beach. Wish us luck and say us a little prayer that everything goes smoothly and there are no emergencies. Ill be back in a few days hopefully with some beautiful pics of all my babies at the beach. P.S. Please be good weather!!!!!!
P.S.S. Layla started her own blog so check it out at http://www.baybesbigsis.blogspot.com/ I havent figured out if there is a way to get to it from my page but heres the link haha.
Saturday, June 13, 2009
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