Dear Doernbecher and OHSU staff that have helped Baybeblue,

So we are being discharged today and I’m really baffled by the way I feel. I should be so excited to get home and really I am, but somehow down deep I feel like my heart has another plan. See, I met these amazing people that somehow manage everyday to take the darkest situations in the most uncomfortable environment and they made me feel at home. They think that I am so strong but they have no idea that it’s them that gives us strength.
When you go to the hospital because your child is ill you become completely vulnerable, you have no choice but to trust that people caring for your child are honest, sincere, and haven’t just come from a horrible home situation themselves. I have had prior experiences and I know there’s no way they can teach caring in medical school, that comes from inside.
So I’m scared and I’m sad. It’s obvious why I’m scared. I have a lot of responsibility to take on when I get home, even more than before and I don’t have a button to push for help. So why am I sad…. I’m sad because I’m leaving. My faith in people and the medical system was crushed before I got here, I didn’t want anyone to touch my child ever again. Now my faith has been renewed. There are people in this world that can ruin your whole day just by giving you one bad look and honestly that is more common than not. You all choose everyday to walk in here and make me feel safe and welcome and like we are all working for a common goal to save my child. I can’t say I’m glad for the bad experiences I had before but It has made it so clear how hard you all work everyday to make positive things happen. I just cant express how relieved I am to have found you all and how much I have grown to care about all of you as well. You have a superstar team with your pediatricians (Dr Newmeyer), neurologists (Jason, Dr Roberts, and the rest of the team), your social workers, discharge planners, Kristie Heeley, amazing team of dieticians, the Xray and mri and swallow study people, Physical and Occupational therapist, and all of the Nurses and nurse aids. I love you all and I appreciate you all so very much. I hope you all know at the end of the day (or morning) how much you are apart of so many lives. You are helping people through the hardest times of there lives. I hope I won’t be back anytime soon, but If we are I know we will be in good hands and that gives me strength. Thank you all for making me a stronger, better person from getting to know all of you.
Love Always,
Cynthia & Baybeblue Campobasso

Hope you kept your fingers crossed

Today is the day we get to go home again, if everything goes good today. Im getting a little sad because I have gotten a little attached to the people here. There are a few nurses that have really just made me feel good being here and I wish there was something I could do to show them how much it means to someone like me in this kind of situation. Im sad because I havemade this room my home and its just gona be scary not being able to call the nurse when something weird is happening. Last night Baybe woke me up at like 4am having a seizure but she was just screaming out these high pitch squeels and screams. Everytime I thought the seizure was over it would start back up. It lasted 5 min and then stopped and we went back to bed. Then Iwoke up a few hours later, its always weird when you wake up and open your eyes and there is three strangers standng by your bed poking at your baby. I felt myself laugh out loud a little and then roll back over and passed out. Yahh I got to sleep in til 8 and I feel good. I got up and started packing and now Im gona wait for the specialists to come and train me to do everything. Please pray for us today that we really get to go home and that I can remember everything they tell me and that we stay home for good. The other two kids really need me, they are falling apart. Taylor cries everytime we talk or he has to leave here and texts me over and over that he wants to be at home with me. Layla needs some mommy attention. Love you all, Thank you for your support.